Thursday, May 4, 2017

Glorifying God in Times of Trial

Good Evening Everyone!! Hope you're having a great day. I have to say that I had a rough day with pain and thoughts. I had a dear friend of mine from church staying with me to help me since I have been injured from participating in aquatic therapy because of my doctor's script. I had a tough time with getting up as I cannot do it on my own. I have to have assistance, then I have to use a walker once I am up. Using the walker is difficult as my right leg is not moving the way it should be. I cannot place my foot flat when walking. It will not go that way. If it is forced to go flat then it snaps back up because it will not go flat. 

I wish that I knew prior to going in the water that it was a bad decision for people like me with Osteogenesis Imperfecta. The resistance of the water and our body weight can cause injury and or fracture.

I was told by my doctor that I will be going for pain management for my leg, pelvis, hip until we figure if there are stress or compression fractures. The place for pain management mentioned about if I would be interested in medical marijuana. I am so on the fence with this. I have to say God has really blessed me, directed me in finding out about this. I knew I needed to find out first and foremost if my insurance covered this or not. I didn't want to get excited about trying something that may work for my pain and help my bones to have that excitement destroyed by the insurance company not covering it. I called our insurance company not sure what to expect out of the phone call, but I can say for sure I was greatly blessed and I was told by the one that I was talking to that I was encouraging to her. She said that I was positive and had a positive spirit. I feel that it was God that brought her and me together tonight in the phone conversation. I feel we both needed to hear each other and what we had to express to one another. I am so happy that God did that. I gave her my site and she said that she'd be sure to research Osteogenesis Imperfecta and come look at my site.  I hope I can be an encourager for her. 

I have to say that today has been very challenging as my leg has been spasming very hard. I cannot walk on my foot - I am walking with a walker. I have a wheelchair to go out to do things. I have to spend my days and nights in the recliner in the living room. I really wish that I could get in my bed. My doctors have said no laying flat it is dangerous at this point. I really miss going upstairs in my house. I ought to end things here for now and write more tomorrow.

Have a great night, thanks for stopping by,

Wednesday, April 26, 2017

I am home...

I titled this I am home. Yes, I am home. It has not been an easy journey. This all started from April 11th my first day of Aquatic Therapy. I left feeling a bit sore. I knew that would happen, but thought this is part of healing. I have to deal with some pain before the healing. Glad that the Lord is my strength to get me better. 

This picture I chose, says "Dear Lord, I come to You today, feeling broken, the same pain, and hurt again. I am honestly tired and weak right now. But I will hold on to You, my sweet Jesus because I know that this is just a part of my journey here as your humble servant." I chose this because although there are pain and feelings of discouragement I know the Lord is always there for me, no matter the situation, the circumstances He's always there. 

Tuesday, April 25, 2017

Missing in Action! Hospital Stay!

Husband while waiting for the doctor to come for me.

Husband took the gurney they wanted for me
I couldn't lay on the gurney as it caused more excruciating pain. I let him have it.
The nurse that came around bringing a warm blanket for me. She thought would be funny to place one over him too. She covered him from head to toe with the blanket, even over
the face. He never reacted, never moved. Haha! She took it from his face and he stayed asleep for a while until the doctors came around for me. 

Finally after x-rays, and CT scan they decided best to admit me to the hospital to see if they could get to the source of my pain and why I am losing function in my right leg.  Mind you all this started from doing aquatic physical therapy. Therapy is to help us to improve our lives make us healthier. Although with me the doctor not being familiar with my disease thought that physical therapy would be too dangerous because of the weight bearing exercises that would be expected of me; having Osteogenesis Imperfecta.  The doctor thought aquatic therapy would be better as the buoyancy would be better for my bones that it would relieve the pressure and I could exercise and improve. 

As I found out from friends and through research that Aquatic therapy is not a good idea for us as our bones can move and not go back into the original place they were. After two sessions the first one lasted less than 15 minutes in the water. The second not much longer than that. I could hardly get out on my own to the car to meet my husband. The doctor told us that aquatic therapy is very dangerous for those of us with Osteogenesis because of the resistance on the bones and muscles in the water. This can cause compression fractures, stress fractures, and edema within the bone.

Here I am in my room. They would not let me lay flat in my bed. I couldn't because of the pain.

The IV - they actually got me on the first try. 
There are 5 different medical bracelets on my wrist.

I realize these leg wraps are to prevent clots, but I call them
the bed tethers - they don't want you to escape, so when you 
try these will have a wait a minute hose attached to them.

The view from my room.

This was my breakfast the first day that I was there.

The walker that you see. That was my main transportation other than the wheelchair.
They liked me in the chair more than using the walker because I was so unsteady.
These are just a few of the medications they currently have me on. 
There are three of them not in this photo after I looked at them.

This all because of Aquatic Therapy. I was doing well prior to starting the therapy. You'd think that doing the therapy would be the better of the moves to do as it would better myself and strengthen me to continue doing well. Now, it's even more difficult as I cannot get around without a walker or wheelchair. I knew with the OI that those two medical assistant items would be part of my daily life, but not this soon.

This has been difficult for my family because we are a single income family due to the challenges that I face daily and many employers while they are not to ask "previous conditions", they tell you-you are a high liability risk then will not hire you. This makes things difficult, but we trust the LORD to provide and HE has provided.

Thursday, April 13, 2017

Aquatic Therapy Pleasant or Torture

Hi, Everyone!!! Just had to use this cute adorable puppy for the cover for the article. I was trying to find a different picture but didn't want to post pictures of other people. I will try and post a picture of the pool where I do my therapy. The photo below is the pool where I do my aquatic therapy. The pool all the way around is 4 feet. Ok, those of you that know me know how short I am. With that being said the 4 feet of water is on my shoulders. You could say doing the therapy is a challenge all on its own. 

Today we did a few things it was quite rough on me. I am glad that I have over a week before I have to go back and pick up paperwork. I asked them to write out a plan for after this because I don't want to use up all my limited therapy visits from my insurance. They could appeal, but from what I have learned the insurance company about 90% of the time will say no.

I have to say that I am paying for it from what we did today. I have been sick and in lots of pain. I am slow moving right now as I write this.  I am thankful that I have a break from therapy for a while. I say that because when I go back it's a paperwork pickup. I will then take the pool therapy to land and incorporate it with my walking. I will beat this with my body. I don't know what the doctor will say when I go back to him in May. We will see. I then see my OI doctor in June. I will not be looking forward to this one as she's going to be moving out of state. 

I have to say so many thoughts are running through my mind right now as I write this. I know some of you may tell me not to think this way or that, but dealing with this daily is difficult. When challenges come up and trying to get through them is difficult and not always the way you think. When it comes to therapy we don't have many options. There are a lot of things that we cannot do because we could fracture easily. 
Thanks for taking time to read, have a good night,

Tuesday, April 11, 2017

In the Eye of the Storm - The Lord remains in control

Greetings Everyone!! Hope today finds you well. This morning's "dance" with my husband was better. I was feeling pretty good. We did our walk then I was downstairs to get ready for the day. I got our son motivated when he came down to get ready for his day. He was quite the sleepy one this morning. He started his day I then had to go to physical therapy. The therapist slotted a 45-60 minute session with me. I did my best. I wasn't liking getting in the pool. Now I understand why I shouldn't have. While one may think that aquatic therapy would be great for someone with brittle bones, it's quite the opposite. I am dearly paying for it now. I made it through 17 minutes. I had to stop it was too painful. I was finding parts of me that were hurting that didn't before. While I know that this is painful I have to look forward not back. I have to look up not down. I am in a storm right now, but God will get me through He remains in control. He guards my soul; no matter the storm I am going through He is there to get me through to the other side. He will do it for you. My special friend sent me this song. I know why it was sent to her, but she felt that I needed to listen and that I would like it. I do like the song very much. I mentioned to her that I had heard it twice last week. When I hear something two or three times in a short time span I listen and pay attention - never know what the Lord is trying to show you or bring to you. You must remain open and alert to what He has for you.

Thanks for Stopping by,

Saturday, April 8, 2017

Saturday Blessings!

Saturday Blessings Everyone! Well, this is a change. I woke up at 4 am for our normal wake up time. I grabbed my medication took that, thought I was going to be up for the day - my body had other plans I was able to fall back to sleep which is unusual for me. I am thankful for the extra rest I don't usually get that due to the pain and discomfort of the Osteogenesis Imperfecta.  Those of us with the disease can attest to the various things that we deal with on a daily basis.

I must say that I am thankful for the friendship that I have made with my "Special Friend." She's great!!! Yes, we may have ups and downs, you know the kind - the bumping of heads on some topics. We have adjusted and learned to get around our "bumps in the road." We are now stronger in our friendship. I thank God for her. We get together and spend time with each other while our children play games together. I am thankful for their friendship as well. They have helped one another with homework as well. I like that they can do that. 

This morning's "dance" was a little easier. I praise God for that. I still loved dancing across the room with my husband. I enjoy our talks. This morning we both were getting up to get our days going. We got down the hall and we were both down the stairs. He did what he needed I got myself ready then our son woke up. We made breakfast.

Yesterday was my first day of physical therapy, but as most of us call it physical torture. Hmm, maybe because we go in with not a lot of pain and walk out with lots of pain. I did experience some pain while there, but when I got home it wasn't that bad until this morning. I guess the work I did, did settle in. I am ok otherwise. I know there will be some discomfort before I get better. I am already working on a plan for after physical therapy.  I want to be the best that I can for my family. I know we can get through this. God blessed me with a therapist that lives close to me. 

I hope you have a great weekend. Spend time with family, friends, and God. 


Thursday, April 6, 2017

Let the Dancing begin.....


Good morning! I pray that you had a good nights rest. I had a little challenge last night, but I'd rather not talk about it. Let's get onto our morning. I pray that you will have a good day ahead of you. 

I "danced" with my husband around our room. Him holding me up as we walked together. We walked the hallway together; talking along the way. I love these early morning "dances" even if they are at 4 am most of the time. Today it was 4:15 am. I decided there was no staying put in bed I needed to get up and get going. The pain was too much. I just couldn't lay there anymore. We made it to the stairs my husband helped me down the first few then I was okay to get down the rest. 

I got myself ready for the day then went to my corner of the living room to spend some quality time with the Lord. I opened my devotional to today and grabbed my Bible to start reading. I always read the scripture reference first then go into the reading.  The scripture for today's devotional is found in Revelation 2:9-10 (NLT) "I know about your suffering and your poverty--but you are rich! I know the blasphemy of those opposing you. They say they are the Jews, but they are not, because their synagogue belongs to Satan. Don't be afraid of what you are about to suffer. The devil will throw some of you into prison to test you. You will suffer for ten days. But if you remain faithful even when facing death, I will give you the crown of life." 

I know I underlined quite a bit here, but there is so much being said in this devotional for today. Where it talks about those living with intractable physical pain, some barely able to function. I know many in the OI community that deals with this daily. I know I have as of late. There are so many days that I cannot even sit up in bed on my own or rise from the bed on my own, but with the help of my husband, I am able to get up. Though it may be painful I keep my trust in God because I know He brings me through the pain, through the fire. He keeps my attitude positive when the enemy wants to annoy me and try to make my attitude less positive. When you think about things, when you are close to God, the more quality time you spend with Him the enemy can't attack you, but annoy you. When you're not walking with the Lord the enemy loves to attack and keep you from God, but that's not what God wants for your life. He wants you to live with Him. When I am dealing with lots of pain whether from injuries or otherwise that's when I am most vulnerable. Words from friends, things I read, maybe even a song that a friend sends I may take all of these wrong - that's when the enemy is causing doubt in me - making me question things. I shouldn't be doing either of those; I should be going to the throne because God is still on the throne. He is our strength whether we are at our weakest moment or at a strong moment when we feel we are close to Him. We need to hold His hand through all that we face whether we think we can go it alone. He is there to help us, guide us, give us wisdom in all situations, circumstances. We need to remember He has promised a crown of life sweeter than life itself. My Lord is a strong, strong mighty tower. Here I am Lord, I am running through the door! I am taking refuge in You! Hold me, Lord! 

Thanks for taking time to read,

Glorifying God in Times of Trial

Good Evening Everyone!! Hope you're having a great day. I have to say that I had a rough day with pain and thoughts. I had a dear f...