Good Morning, Everyone! Today is the day we get the results of all the tests. I am praying for the best. I know that God has brought me from mountain to mountain, level to level in my walk with Him. The journey hasn't always been easy, but what comes out of the challenges, the miracles, the amazing things that I have experienced in my life that the Lord has brought me through outweigh the burden, the fear, the tears, the sleepless times, the times with pain by far!
This is how I am going to roll with what's coming at me today. I will be wearing my OI (Osteogenesis Imperfecta) shirt that a bestie gave to me. I love you Jenn, (Goose). She bought me this shirt because she knows my humor and how I roll with things. She has known with this disease that both our son and I face daily hasn't been an easy one especially in the beginning. She and others know how torn I was. How I was so afraid that our son was going to die, what do I do now? Where do I turn? How do I get information on this disease? Is there information on this? What are the treatments? How harmful are they? These are just a few of the thoughts running through my and my husband's minds at the time of diagnosis. Never did we see that within a few months I too would be diagnosed with Osteogenesis. I was still scared as I was still learning, yet I was now building my knowledge base. I was building my support system. I was gaining friendships that the Lord was putting me in touch with strong Christian friends.
One of my best friends lives in New Hampshire. Keith and his beautiful wife Lisa have been great inspirations, great information providers, a great support team for our son and I when we'd face infusions, tests, hiccups along the road of OI we'd struggle through. The phone calls that would come and calls I'd make to them they would provide answers if they had them, prayer and most of all encouragement. When calls would come sometimes that support would be me giving it to Keith through his challenges with the OI. Giving encouragement and guidance on things that he's facing as well. This is how we roll through this day by day, week by week, month by month, year by year.
I won't lie and say I am fine with the appointment coming today to get results. I am not fine, I am a bit nervous, and not sure I am ready for the words the doctor will express to me today. I know that I have to move forward. I have to be ready for the diagnosis, is it going to be a severe cycle of the current type of OI I have now? Is it going to be a more severe Type of OI? Is it going to be cancer? How strong am I? I am blessed with many caring friends and I am glad they're in my life and I try to be as caring and there for each and every one of my friends even if they're states away from me. One of my great friends gave me this message prior to my leaving for my appointment. "Prayers the results are going to be not what you think, but a way to make improvements. I feel very confident in your results."
I am now home from the appointment. The appointment took much longer than expected. I arrived and was checked in by 1:20 pm had my appointment with my doctor and finished out with going to the lab for more blood work. By the time I arrived home it was after 5 pm. Now an overview of the appointment. My doctor began by thoroughly going over my record with me making certain all the information was correct; any updates or concerns were added in so that proper attention can be given or directed for that specific concern. After this was done we discussed the results of recent testings and bloodwork. I was given the information that I have been waiting for since before Christmas. I must say first off I was told the results do not show cancer. I praise God for that result, AMEN!! The next concern was is this a more severe type of OI (Osteogenesis Imperfecta); the next result says No, this is not a more severe form of OI. I praise God for this result, AMEN! Now for the rest of the results. I was told that between bones and muscle pain I am in pain 97% of my body. That doesn't sound good, but there is a way to help this and we are on that to get the pain reduced and stopped. They did more bloodwork to make certain nothing was missed. The doctor did say that I was in a more severe state with my OI. I was also advised about Reclast infusions and the benefits that they give. I am now scheduled for a bone density scan for next week. When the bloodwork results return and the scan is done we will set schedule for the Reclast infusions. I am also being scheduled with a Rheumatologist and an Autoimmune Specialist.
The infusions are going to be a hard rough road, BUT I am going forward and will deal with the harsh side effects as they come. They may knock me, but I refuse to let them break me!
I love when friends send me encouraging messages. They have really blessed me with all that I have had coming at me in this. I will leave you with those encouraging words.
"You may feel defeated. But, you are more than a conqueror! You may feel cast down. But you are victorious in Christ Jesus! You may not understand why so much is happening in your life that you don't understand....BUT, for every struggle, for every disappointment you had, for every time you felt alone, for every friend that left you God has a turnaround for you!" *this is from INSTAGOD MINISTRIES
"God already solved your eternity problem, why wouldn't He solve your temporary problems?"
"Will keep you in my prayers. Wish there was more that I could do."
"Good Luck Kiddo... I hope they don't make you too sick and your bones get strong. Sorry, I hope the treatments work."
"OK. GOOD FOR YOU! Our God has taken care of you. HE has steadied your emotions; HE has saved you from cancer; HE has given the doctors a way for treatment; HE will be with you throughout this difficult time. RED SEA RULES will prevail! Again--has your front, your back, both sides and everything in between -- you are in better hands than Allstate!!!!"
"This is great Leah that it isn't cancer or another form of O.I. I hope your other visits go well and they can help you."
"I was wondering how it went. Will continue to pray."
"I'm so glad it's not cancer Leah. I'm hoping infusions will help you. Keep your chin up Leah <3"
Thanks for hanging out. I hope you've enjoyed your visit. I will post as I go forward with treatments and let you know how things are going. I will now leave you with something fun. This was at my doctor's office.
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